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  LiveWire / Teen Forums / Living with Disabilities / Viewing Topic

i know this is kinda specialised, but i need to get it off my chest
Replies: 10 — Last Post June 22 11:02am by Lightning Strikes
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Web Resources: Drug Myths Dispelled, Drug & Alcohol Information
USA Drug Abuse Hotline: 1-800-662-4357
( aisling1991 )


Quality Control Engineer 		Reply
yeah it's 1am over here so it's stopping me from sleeping. =[  So, my cystic fibrosis is really really in the way of my life now.  It's a constant everyday battle that I'm losing.  I do all my treatment so strictly but I'm allergic to a lot of the main drugs that keep the average cf person going so that really doesn't help.  I can't walk anywhere now without going really slowly, and stopping every few minutes.  Every time I have sex with my boyfriend, I get so worn out that I just have to stop.  I can't get dressed because I get so out of breath.  It's ridiculous, my lung function is like 15%.  I have a hospital appointment on Monday and no doubt they'll want to bring me in for a few weeks AGAIN, but that would already be the 3rd time since January.  I was in 29th Jan - 6th March.  Then 8th April - 22nd April.  Then I did the extra treatment at home for 2 weeks and it just ended and now I'll probably be going in again.  I want some miracle new treatment that I'm not allergic to or a miracle cure or a transplant.  AH.
5:09 pm on June 21, 2008 | Joined May 2008 | 25 Days Active
Join to learn more about aisling1991 England, United Kingdom | Straight Female | 515 Posts | 876 Points
picklez118


Advisor 		Reply
i am sorry for that.

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First, God created man. Then he had a better idea.
5:11 pm on June 21, 2008 | Joined June 2008 | 15 Days Active
Join to learn more about picklez118 Colorado, United States | Straight Female | 428 Posts | 627 Points
hateitandloveit


Visionary 		Reply
aww I'm really sorry :(

Post edited at 5:12 pm on June 21, 2008 by hateitandloveit

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You.. let me believe...
and then I failed again.

5:11 pm on June 21, 2008 | Joined Jan. 2008 | 126 Days Active
Join to learn more about hateitandloveit Massachusetts, United States | Straight Male | 5666 Posts | 8465 Points
HateParents


Executive 		Reply
Totally lame.

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My clip is full, but that will change;
Heard you got your vest on, but I want brains.
5:11 pm on June 21, 2008 | Joined Feb. 2008 | 84 Days Active
Join to learn more about HateParents Washington, United States | Straight Male | 2139 Posts | 3144 Points
saandra


Advisor 		Reply
awwes :( so sad
dont worry, ppl are always discovering things
im sure there'd be something for you soon!

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"Very funny, Scotty. Now beam down my clothes."
5:16 pm on June 21, 2008 | Joined June 2008 | 16 Days Active
Join to learn more about saandra Ontario, Canada | Questioning Female | 331 Posts | 593 Points
jamuban08


Dairy Product Addict 		Reply
srry 2 hear that.  

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aquarians are too smart 4 u and u know it
5:17 pm on June 21, 2008 | Joined June 2008 | 48 Days Active
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sexybackstabber


Dairy Product Addict 		Reply
i'll pray for u :)
5:18 pm on June 21, 2008 | Joined May 2008 | 50 Days Active
Join to learn more about sexybackstabber California, United States | Questioning Female | 481 Posts | 1096 Points
factboy01


Dairy Product Addict 		Reply
I am sorry for your ordeal. :<

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The more you run, the better chance I get to hit you.
5:27 pm on June 21, 2008 | Joined Sep. 2007 | 68 Days Active
Join to learn more about factboy01 New Mexico, United States | Straight Male | 374 Posts | 1104 Points
lucaslove


Personal Assistant 		Reply
what hospital you at? some in london have better treatment for you as they have the bes drugs of both

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Everything is a mythical, cosmic battle between faith and chance.
7:49 am on June 22, 2008 | Joined June 2008 | 10 Days Active
Join to learn more about lucaslove England, United Kingdom | GLBT Ally Male | 129 Posts | 240 Points
da spork


Technician 		Reply
I'll keep you in my thoughts. =]
8:25 am on June 22, 2008 | Joined June 2008 | 21 Days Active
Join to learn more about da spork Virginia, United States | Straight Female | 125 Posts | 373 Points
Lightning Strikes


Wealthy Hobo 		Reply
On the bright side; my friend (who has cf) told me the other day that apparently a cure is meant to be discovered by 2021!

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Thea♥
Myspace?
11:02 am on June 22, 2008 | Joined Aug. 2007 | 177 Days Active
Join to learn more about Lightning Strikes England, United Kingdom | Straight Female | 2766 Posts | 5437 Points
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