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  LiveWire / Teen Forums / Living with Disabilities / Viewing Topic

Recent Diagnosis
Replies: 20Last Post Nov. 22, 2008 12:22pm by Catacomb
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( Anonymous )

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I've recently been diagnosed with a life time illness. It's not life threatening and I'm really damned grateful it's not.

I'm not going to say what it is, or confirm any suspicions because I don't really want it to define me, that's my problem.

Symptoms include many things, that separately you wouldn't think a problem exists. Headache, nausea, lethargy, decreased libido, cold hands and feet, sore muscles, constipation, memory loss and depression.

It's affecting me day-to-day. I'm constantly tired, sore muscles, and I've noticed the memory loss more lately. The headache and nausea I just can't control. It's affected my diet to the point where I barely eat a thing, and people often wonder why I still exist, more or less.

What my problem is, is dealing with it. It's just a diagnosis. I am not serious enough to receive medical treatment so it's not been formally discussed with a doctor yet. So I'm left in limbo until it gets worse. And it can only get worse. Because of this, I've just been putting it to the back of my mind. Forgetting it's there, but then suddenly I'm like "Fuck, I'm stuck with this FOREVER" and it really depresses me.

Are there ways of coming to terms with it or anything? Without ignoring it's a condition I have, and will not get rid of? Because each time I think about it, I'm back at square one, back on the bottom rung of the ladder, sliding back down that snake.

I know it's not life threatening, and like I said, I'm more than grateful that that's the case. But it's still something quite large and rather important to me.


11:30 am on Nov. 19, 2008
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Suicidebooth


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whats that called that you hve i want to know i thiink i my have that

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11:32 am on Nov. 19, 2008 | Joined: Sep. 2008 | Days Active: 363
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YourPerfectOne


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Feel bad for you.

11:32 am on Nov. 19, 2008 | Joined: Nov. 2008 | Days Active: 1
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somebody555

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oh. i feel sorry 4 u man...

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the best number 69

11:33 am on Nov. 19, 2008 | Joined: Nov. 2008 | Days Active: 44
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Molfsontan


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Do you have Fibromyalgia or Gilbert's Syndrome?

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11:33 am on Nov. 19, 2008 | Joined: Aug. 2008 | Days Active: 97
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gothjuggalo


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well thats not good about the condition but i believe sooner or later you will eventully come to terms with it

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people say they understand but do they really?

11:34 am on Nov. 19, 2008 | Joined: Oct. 2008 | Days Active: 31
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Azzurro


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It wont happen instantly, you know that.

Give it time, it wont be perfect but youll find the best ways for YOU To cope. Its different for everyone.

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Yo, I'ma let you finish, but Lestat was one of the best vampires of ALL times.
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11:34 am on Nov. 19, 2008 | Joined: Jan. 2007 | Days Active: 292
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Chiefette


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I think I know what it is.

Post edited at 11:36 am on Nov. 19, 2008 by Chiefette

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11:35 am on Nov. 19, 2008 | Joined: Sep. 2008 | Days Active: 267
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( Anonymous )

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Quote: from masterzion at 7:32 pm on Nov. 19, 2008

whats that called that you hve i want to know i thiink i my have that

see a doctor if you think something is wrong.

Quote: from Molfsontan at 7:33 pm on Nov. 19, 2008


Do you have Fibromyalgia or Gilbert's Syndrome?

this is not my issue.


11:35 am on Nov. 19, 2008
( Anonymous )

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Quote: from Glory at 7:35 pm on Nov. 19, 2008

I think I know what it is.

but why is that important?

I made a point that WHAT it is, is not important. MY mother and sister have it.

It's dealing with it that's important to me.


11:37 am on Nov. 19, 2008
Azzurro


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Quote: from Anonymous at 11:37 am on Nov. 19, 2008

Quote: from Glory at 7:35 pm on Nov. 19, 2008

I think I know what it is.

but why is that important?

I made a point that WHAT it is, is not important. MY mother and sister have it.

It's dealing with it that's important to me.


Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work.

You need to give it time and I realise your just looking for comfort.....

It will take time.

-------
And so the lion fell in love with the lamb,
what a stupid lamb, what a sick masochistic...
Yo, I'ma let you finish, but Lestat was one of the best vampires of ALL times.
Š Ξ Ģ


11:41 am on Nov. 19, 2008 | Joined: Jan. 2007 | Days Active: 292
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Chiefette


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Is it Raynaud Phenomenon?

It is hard to give advice without knowing exactly what it is.  If we cannot fully understand the disease, we don't know how to give you good advice.

Post edited at 11:42 am on Nov. 19, 2008 by Chiefette

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If you come across a car accident after midnight, and everyone is sober;
Keep looking, you are missing someone.

-Rules of EMS


11:41 am on Nov. 19, 2008 | Joined: Sep. 2008 | Days Active: 267
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( Anonymous )

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Quote: from Glory at 7:41 pm on Nov. 19, 2008

Is it Raynaud Phenomenon?

It is hard to give advice without knowing exactly what it is. If we cannot fully understand the disease, we don't know how to give you good advice.


No.


11:43 am on Nov. 19, 2008
Chiefette


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Then I am done here.  If you are not willing to work with us, so we can help you.  It isn't worth my time to try, sorry.

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If you come across a car accident after midnight, and everyone is sober;
Keep looking, you are missing someone.

-Rules of EMS

11:43 am on Nov. 19, 2008 | Joined: Sep. 2008 | Days Active: 267
Join to learn more about Chiefette Florida, United States | Straight Female | Posts: 7,926 | Points: 11,826
( Anonymous )

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In NO way shape or form does clarifying what it is help.

I've given you:
> life time
> not life threatening
> symptoms
> cannot have medical treatment yet cos I'm not bad enough
> once bad enough, it can be sorted via medical treatment and I will no longer have these symptoms to the severity I have now.

Giving it a name gives you nothing more.


11:46 am on Nov. 19, 2008
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