Adding Reply Archived Topic: It will not be bumped to the top of the forum. Topic Recent Diagnosis Membername   Not a member? Sign Up Free (takes 20 seconds) Password   Forgotten your password? Post Font: Verdana Arial Black Georgia Comic Sans Impact   Size: Tiny Normal Big Huge   Color: Default Dark Red Red Orange Brown Green Olive Cyan Blue Dark Blue Indigo Black [ Check Spelling ] [ Post Preview ] [ LiveTags ] FAQ Keyword Search: Post Options Favorites Manager Notify me of new replies to this topic by email Notify me of new replies to this topic by private message Original Post Anonymous Posted at 11:30 am on Nov. 19, 2008 I've recently been diagnosed with a life time illness. It's not life threatening and I'm really damned grateful it's not. I'm not going to say what it is, or confirm any suspicions because I don't really want it to define me, that's my problem. Symptoms include many things, that separately you wouldn't think a problem exists. Headache, nausea, lethargy, decreased libido, cold hands and feet, sore muscles, constipation, memory loss and depression. It's affecting me day-to-day. I'm constantly tired, sore muscles, and I've noticed the memory loss more lately. The headache and nausea I just can't control. It's affected my diet to the point where I barely eat a thing, and people often wonder why I still exist, more or less. What my problem is, is dealing with it. It's just a diagnosis. I am not serious enough to receive medical treatment so it's not been formally discussed with a doctor yet. So I'm left in limbo until it gets worse. And it can only get worse. Because of this, I've just been putting it to the back of my mind. Forgetting it's there, but then suddenly I'm like "Fuck, I'm stuck with this FOREVER" and it really depresses me. Are there ways of coming to terms with it or anything? Without ignoring it's a condition I have, and will not get rid of? Because each time I think about it, I'm back at square one, back on the bottom rung of the ladder, sliding back down that snake. I know it's not life threatening, and like I said, I'm more than grateful that that's the case. But it's still something quite large and rather important to me.

Replies Catacomb Posted at 12:22 pm on Nov. 22, 2008 i am confused Anonymous Posted at 11:56 am on Nov. 19, 2008 kk Chiefette Posted at 11:53 am on Nov. 19, 2008 Then I cannot help you. Anonymous Posted at 11:50 am on Nov. 19, 2008 heh. mods know who I am, and am close with more than a few. I do not wish for them to know what it is I have been diagnosed with. In fact, this is the first time I've even said anything remotely this open about it. Understand the closed-ness now? [I couldn't think of the damned word] Chiefette Posted at 11:48 am on Nov. 19, 2008 Yes, it does.  Simply giving someone symptoms doesn't give anyone an understanding.  Giving me a name, gives me that ability to research it, and get an understanding of it.   Like I said, you are anon, no one knows who you are.  If you wanted help, you wouldn't have a problem giving a name.   Anonymous Posted at 11:47 am on Nov. 19, 2008 Quote: from WindLord at 7:41 pm on Nov. 19, 2008 Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work. You need to give it time and I realise your just looking for comfort..... It will take time. thank you, btw Anonymous Posted at 11:46 am on Nov. 19, 2008 In NO way shape or form does clarifying what it is help. I've given you: > life time > not life threatening > symptoms > cannot have medical treatment yet cos I'm not bad enough > once bad enough, it can be sorted via medical treatment and I will no longer have these symptoms to the severity I have now. Giving it a name gives you nothing more. Chiefette Posted at 11:43 am on Nov. 19, 2008 Then I am done here.  If you are not willing to work with us, so we can help you.  It isn't worth my time to try, sorry. Anonymous Posted at 11:43 am on Nov. 19, 2008 Quote: from Glory at 7:41 pm on Nov. 19, 2008 Is it Raynaud Phenomenon? It is hard to give advice without knowing exactly what it is. If we cannot fully understand the disease, we don't know how to give you good advice. No. Chiefette Posted at 11:41 am on Nov. 19, 2008 Is it Raynaud Phenomenon? It is hard to give advice without knowing exactly what it is.  If we cannot fully understand the disease, we don't know how to give you good advice. Azzurro Posted at 11:41 am on Nov. 19, 2008 Quote: from Anonymous at 11:37 am on Nov. 19, 2008 Quote: from Glory at 7:35 pm on Nov. 19, 2008 I think I know what it is. but why is that important? I made a point that WHAT it is, is not important. MY mother and sister have it. It's dealing with it that's important to me. Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work. You need to give it time and I realise your just looking for comfort..... It will take time. Anonymous Posted at 11:37 am on Nov. 19, 2008 Quote: from Glory at 7:35 pm on Nov. 19, 2008 I think I know what it is. but why is that important? I made a point that WHAT it is, is not important. MY mother and sister have it. It's dealing with it that's important to me. Anonymous Posted at 11:35 am on Nov. 19, 2008 Quote: from masterzion at 7:32 pm on Nov. 19, 2008 whats that called that you hve i want to know i thiink i my have that see a doctor if you think something is wrong. Quote: from Molfsontan at 7:33 pm on Nov. 19, 2008 Do you have Fibromyalgia or Gilbert's Syndrome? this is not my issue. Chiefette Posted at 11:35 am on Nov. 19, 2008 I think I know what it is. Azzurro Posted at 11:34 am on Nov. 19, 2008 It wont happen instantly, you know that. Give it time, it wont be perfect but youll find the best ways for YOU To cope. Its different for everyone. Most recent 15 of 20 previous replies displayed.