-- Posted by Anonymous at 11:30 am on Nov. 19, 2008 I've recently been diagnosed with a life time illness. It's not life threatening and I'm really damned grateful it's not. I'm not going to say what it is, or confirm any suspicions because I don't really want it to define me, that's my problem. Symptoms include many things, that separately you wouldn't think a problem exists. Headache, nausea, lethargy, decreased libido, cold hands and feet, sore muscles, constipation, memory loss and depression. It's affecting me day-to-day. I'm constantly tired, sore muscles, and I've noticed the memory loss more lately. The headache and nausea I just can't control. It's affected my diet to the point where I barely eat a thing, and people often wonder why I still exist, more or less. What my problem is, is dealing with it. It's just a diagnosis. I am not serious enough to receive medical treatment so it's not been formally discussed with a doctor yet. So I'm left in limbo until it gets worse. And it can only get worse. Because of this, I've just been putting it to the back of my mind. Forgetting it's there, but then suddenly I'm like "Fuck, I'm stuck with this FOREVER" and it really depresses me. Are there ways of coming to terms with it or anything? Without ignoring it's a condition I have, and will not get rid of? Because each time I think about it, I'm back at square one, back on the bottom rung of the ladder, sliding back down that snake. I know it's not life threatening, and like I said, I'm more than grateful that that's the case. But it's still something quite large and rather important to me. -- Posted by Suicidebooth at 11:32 am on Nov. 19, 2008 whats that called that you hve i want to know i thiink i my have that -- Posted by YourPerfectOne at 11:32 am on Nov. 19, 2008 Feel bad for you. -- Posted by somebody555 at 11:33 am on Nov. 19, 2008 oh. i feel sorry 4 u man... -- Posted by Molfsontan at 11:33 am on Nov. 19, 2008 Do you have Fibromyalgia or Gilbert's Syndrome? -- Posted by gothjuggalo at 11:34 am on Nov. 19, 2008 well thats not good about the condition but i believe sooner or later you will eventully come to terms with it -- Posted by Azzurro at 11:34 am on Nov. 19, 2008 It wont happen instantly, you know that. Give it time, it wont be perfect but youll find the best ways for YOU To cope. Its different for everyone. -- Posted by Chiefette at 11:35 am on Nov. 19, 2008 I think I know what it is. -- Posted by Anonymous at 11:35 am on Nov. 19, 2008 Quote: from masterzion at 7:32 pm on Nov. 19, 2008 whats that called that you hve i want to know i thiink i my have that see a doctor if you think something is wrong. Quote: from Molfsontan at 7:33 pm on Nov. 19, 2008 Do you have Fibromyalgia or Gilbert's Syndrome? this is not my issue. -- Posted by Anonymous at 11:37 am on Nov. 19, 2008 Quote: from Glory at 7:35 pm on Nov. 19, 2008 I think I know what it is. but why is that important? I made a point that WHAT it is, is not important. MY mother and sister have it. It's dealing with it that's important to me. -- Posted by Azzurro at 11:41 am on Nov. 19, 2008 Quote: from Anonymous at 11:37 am on Nov. 19, 2008 Quote: from Glory at 7:35 pm on Nov. 19, 2008 I think I know what it is. but why is that important? I made a point that WHAT it is, is not important. MY mother and sister have it. It's dealing with it that's important to me. Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work. You need to give it time and I realise your just looking for comfort..... It will take time. -- Posted by Chiefette at 11:41 am on Nov. 19, 2008 Is it Raynaud Phenomenon? It is hard to give advice without knowing exactly what it is.  If we cannot fully understand the disease, we don't know how to give you good advice. -- Posted by Anonymous at 11:43 am on Nov. 19, 2008 Quote: from Glory at 7:41 pm on Nov. 19, 2008 Is it Raynaud Phenomenon? It is hard to give advice without knowing exactly what it is. If we cannot fully understand the disease, we don't know how to give you good advice. No. -- Posted by Chiefette at 11:43 am on Nov. 19, 2008 Then I am done here.  If you are not willing to work with us, so we can help you.  It isn't worth my time to try, sorry. -- Posted by Anonymous at 11:46 am on Nov. 19, 2008 In NO way shape or form does clarifying what it is help. I've given you: > life time > not life threatening > symptoms > cannot have medical treatment yet cos I'm not bad enough > once bad enough, it can be sorted via medical treatment and I will no longer have these symptoms to the severity I have now. Giving it a name gives you nothing more. -- Posted by Anonymous at 11:47 am on Nov. 19, 2008 Quote: from WindLord at 7:41 pm on Nov. 19, 2008 Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work. You need to give it time and I realise your just looking for comfort..... It will take time. thank you, btw -- Posted by Chiefette at 11:48 am on Nov. 19, 2008 Yes, it does.  Simply giving someone symptoms doesn't give anyone an understanding.  Giving me a name, gives me that ability to research it, and get an understanding of it.   Like I said, you are anon, no one knows who you are.  If you wanted help, you wouldn't have a problem giving a name.   -- Posted by Anonymous at 11:50 am on Nov. 19, 2008 heh. mods know who I am, and am close with more than a few. I do not wish for them to know what it is I have been diagnosed with. In fact, this is the first time I've even said anything remotely this open about it. Understand the closed-ness now? [I couldn't think of the damned word] -- Posted by Chiefette at 11:53 am on Nov. 19, 2008 Then I cannot help you. -- Posted by Anonymous at 11:56 am on Nov. 19, 2008 kk -- Posted by Catacomb at 12:22 pm on Nov. 22, 2008 i am confused